Tuesday, July 22, 2014

Dear Cameron and Heather

Hi friends. Life is busy. And good. 

Althought this has been a Dystonia-related blog and my personal journey with all that comes along with that, you never know who you might reach. I have underestimated the power of social media and who this blog and my words might touch. 
I have heard from people from a total of 6 different countries now who have stumbled across my blog. I don't know how it happens but it does and it's mind blowing.

I am a big believer in paying it forward, having compassion, and being a kind person in general. Life is too short to be a selfish asshole.
Personally, I am doing great. Dystonia is there but I'm living. It is SO EASY to get caught up in my own stuff. When I'm doing bad, it's easy to get caught up in how shitty I feel. When I'm doing good, it's easy to get caught up in how awesome life is and how truly blessed I am.

just because I am thriving, not everyone out there is. This blog is not for me. The fact of the matter is, we are ALL terminal. None of us will make it out alive. My personal belief is that when that day comes, my bags are packed for paradise. I know not everyone holds this belief and that's okay-all I can do is speak my truth and that is what keeps me going. People ask how I deal, and there it is. Absolute faith.

But let's be honest. Life is hard enough for everyone..throw an incurable disorder in the mix, a painful disease, a deadly cancer, and life can just seem downright cruel.
Don't believe that lie. There is SO MUCH GOOD. In the midst of all the SHIT there is SO MUCH GOOD. Repeat that with me. There.Is.Good. People can be good and if there is something I can do to help restore someone's faith in humanity or even just a single kind being, I'm game. So let me tell you about Cameron and Heather...

Cameron and Heather are married. Heather was diagnosed with Mesothelioma 3 months after giving birth to her daughter. She was given 15 months to live. That was 8 years ago.
Heather had a life-saving surgery and had her left lung removed. Heather was lucky to live but others are not so fortunate. Much like Dystonia, there is a lack of education and awareness and Cameron has asked for my help in putting some information in my blog in hopes it will spread outward and onward. It is a preventable cancer and they are hoping to save lives by spreading awareness. Heather lived and instead of counting her lucky stars and moving on with her life, she and her hubby are choosing to make resources available in hopes of saving a life, which in my opinion makes them pretty damn cool.Here is a bit of education and information for ya'll:

The Mesothelioma Cancer Alliance has dedicated a significant amount of time in making mesothelioma.com the best resource for patients, families, and individuals wanting to learn more about the disease. The hope is that with a successful campaign, we can educate more people about this devastating disease and raise more awareness than ever!
Let me repeat that: mesothelioma.com

I have been absolutely stunned by how many people my blog has reached, who have found refuge and solace in the fact that we are not alone in this crazy disorder. Again...we are all terminal. Dystonia or no Dystonia, mesothelioma or not. If there is something you can do to make someone's journey a little better, a little smoother, filled with just a little more joy,  just do it. It's really not that hard. Be a nice person. Get your head out of your ass and pay it forward. I love you all. Thank you thank you thank you for the support and emails and kind words. You are all angels. 

If you love hard, don't apologize for your superpower. 
"this is for you...
this is for the no becoming yes
for scars becoming breath
for saying i love you to people who will never say it to us
for scraping away the rust and remembering how to shine
for the dime you gave away when you didn't have a penny
for the many beautiful things we do
for every song we've ever sung
for refusing to believe in miracles
because miracles are the impossible coming true
and everything is possible"
       -Andrea Gibson, "Say Yes"

       You were singing in the dark
whispering your promise
   even when I could not hear
I was held in your arms
   carried for a thousand miles to show
not for a moment did you forsake me 
Meredith Andrews


  1. As a sign of gratitude for how my husband was saved from ALS, i decided to reach out to those still suffering from this.
    My husband was diagnosed of ALS in 2013 and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, he always have trouble swallowing , and he always complain of Weakness of the body . we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the cure to ALS. I never imagined ALS has a natural cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and my husband used it and in one months he was fully okay even up till this moment he is so full of life. ALS has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony.

    Is my pleasure to comment on this site and i thank the admin of this site for his/her great work so far.one of the happiest moment in my life was when the doctor confirm that my wife is been free from this illness. this awesome moments makes me the happiest man on earth, I really don't know how to thank DR WILLIAMS for helping my wife get cured for over how many year of suffering from dystonia. i came across DR Williams contact through a headline news on internet about how DR Williams help a woman to get cured of her dystonia and so many other with similar body problem ,i contacted him and he told me how to get his herb,few day later he sent me the herbal portion which my wife take every morning for 28 days, and his medicine was able to cure her completely from dystonia. and now she very mush okay without any side effects whatsoever, If you have dystonia, you can contact him on his email address drwilliams098675@gmail.com for advice and for his product.

  3. Thanks to Dr Williams I am so mush happy today, I have been suffering from cervical dystonia for the past 8 years now, and i have spent a lot on western drugs which has all proved abortive, i have tried all means in life to become dystonia free , but there was no answer until i decided to try herbal solution and i found Dr Williams online and i contacted him and after I took his medication as instructed, i am now completely free from dystonia within one month of usage, i am so much happy, thanks to Dr Williams for helping me get my life back again without any form of crisis, i promise to tell your name and good deeds to the whole world,if you have dystonia you can always go through his website on drwilliams098675@gmail.com for more information .

  4. I am Karen from Canada, I once suffered from cervical dystonia,for more than 30 years , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly had jerky head movements and muscles contract ,this ailment was really terrible especially when am going out with my friends, i have this constant disorder for about 30 years, this was really a terrible ailment ,on thin one day that i was going through the internet,and i came across a post of Mrs Jessica on how her daughter was been cured from cervical dystonia through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months as prescribed by Dr Williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again for more information you can email him on drwilliams098675@gmail.com for help